Family picture taken 1 week after diagnoses

Family picture taken 1 week after diagnoses

Wednesday, July 13, 2016

Still Battling

   It's definitly time for a current picture. I just love looking at this one though. It marks the beginning of our hard battle and reminds how devastated I was at the "terminal" news, and yet we are still battling.
    It's been a rough couple of weeks. Immunotherepy knocked me off of my feet pretty hard. after dealing with quite bit of pain (and a lot of narcotics) for about a week I ended with some strange neurological symptoms and ended up in the Stanford ER. They kept me overnight and got me an emergency MRI which revealed new spots on the brain. The verdict: Full Brain radiation.
   They were trying to put that off for as long as possible but the time for it has come.  The good news is that from here on out, I have a great excuse for forgetting dates and names, and talking like I don't have a brain in my head. It's perfect! If all my cognitive skills come back I'm totally going to fake it so no one knows. :)  
 Radiation is suppossed to start next week. I don't have it all scheduled yet which makes me a bit anxious,but it gives me some practice in my trusting God skills. He has ALWAYS worked out the details and so far, He is still right on the money. He shows me again and again that the worry was for nothing because He's holding every detail in His capable hands.
   We are postponing the immunotherapy until after radiation. my Dr. decided to have mercy on me, and I'm so grateful.
   Thank you so much for the many ways many of you have shown us love. We are so grateful for the prayers and the ways you let us know that you are praying for us. Every card is precious to me and brings me quiet smiles and tears. My prayer has been asking for God's will to be done in our life, and someday my death. also asking for His help in trully wanting that, no mater what His will is. It's a hard prayer but also brings me to a beautiful and intimate place with the LORD. It helps give me great conviction in God's love and plan for me, and great confidence that no matter the outcome, He will walk with us along the way, and that gives me great comfort.